Things are getting real, my friends. It hit me this past Thursday, when my university announced that we’d be finishing the semester online. COVID-19 is scary. It’s especially scary for those who are at “high risk”—like me. And since things are getting real—I’m about to get REAL. This is what I wrote in my journal … Continue reading COVID-19
Last week I celebrated my 23rd birthday, which is hard to believe I know. The day before my birthday marked five years exactly since I had my first Ig infusion. I was diagnosed with a primary immunodeficiency towards the end of my senior year of high school, after many years of sickness, infections, tests and … Continue reading 5 Years of Ig Infusions
April was Primary Immunodeficiency Awareness Month, but I was so overwhelmed with crazy end-of-semester stuff and crazy body stuff that I totally goofed—I didn’t write a single PI awareness post on my blog about PI. But better late than never right? So let’s talk about it. What is a primary immunodeficiency and what is it not? What PI is: … Continue reading What is Primary Immunodeficiency?
Ok so here's a video (well three technically) of me doing my subq Ig infusion. Below the videos I've outlined the steps to doing an at-home infusion. Happy infusing! -I'm not sure why I'm upside down in the freeze frame but once you play the video I stop hanging from the ceiling- In case you … Continue reading Subcutaneous Ig Infusions Part Two: Infusing
This past week I did my monthly order of my Ig meds (Gamunex-c right now) and supplies. Since I've been doing this once a month for nearly five years now, it is totally automatic. I know all the names of the supplies, the amounts I need, the sizes I need, etc. But as I was … Continue reading Subcutaneous Ig Infusions Part 1: Supplies
The start of a new year is great right? You watch the ball drop, raise a glass, make resolutions--all that good stuff. January first comes around each year and you feel a sense of a fresh start. You look back on the previous year and see how far you've come; you look forward into the … Continue reading The Chronic Illness New Year
"Invisible illness" is a term you see thrown about a lot these days, but have you ever wondered exactly what it means--how an illness can be "invisible?" Well if so, good. You're in the right place, cuz I'm about to explain. Or try to at least. See these two good-looking sisters? Pretend for a moment … Continue reading How Can an Illness be Invisible?
Hydration is key for Ig infusions, whether you’re doing IVIG of SCIG. I’ve learned this the hard way over the years. Once, I didn’t hydrate well enough before IVIG and my blood pressure plummeted so badly in response to the medicine that I almost ended up going for a ride in an ambulance. Now I … Continue reading How to Hydrate for Your Ig Infusion
Well that title is fairly self-explanatory I think. So see you next week. Just yankin your chain. This week can be somewhat appropriately represented by these three nouns. First, Trolls. My oldest niece is currently going through a Trolls phase. At least twice a day she asks for "Everybody oh oh oh." Since she is … Continue reading Trolls, Molds and Woman Colds
Friday at , at long last, I got my Ig meds and was able to do an infusion. It had been exactly three weeks since my last infusion, beating out my previous record of time-without-an-infusion (since I've started infusions that is) by several days. It's been a long three weeks. Amazingly, I did not get … Continue reading I Earned My Stripes with a New Zebra Record (Or Two)